For those who have had cancer though, did you have to do radioactive iodine. I finally had it yesterday and it went well, although the nodule was much larger than the ultrasound had detected. the only thing is the my 1 inch insicion is super itchy sometimes but i keep out of the sun & use a light scarf.Best of luck on your surgery, think positive & take care of yourself ? For those of you who had the surgery did the doctor prescribe antibiotics ? The worst thing has been the tiredness. Any help would be greatly appreciated. So is all this for naught? I would not wait if you have a large nodule, it gets more difficult to remove the larger it gets. I only used for about a month and I cant see or feel the scar! Im sleeping like a newborn baby. I didnt feel bad during that time, only taking it easy to recover. It went pretty well but I am surprised by the amount of pain I still feel. I am not in the greatest shape, but this will be different for everyone. It was a breeze for me. Aspiran biopsy reported indeterminate/ suspicious , findings of hurthle cells which the adpiran biopsy can not determine. I just had my needle biopsy on February 16, 2017. Endocr Connect. I am feeling better than I thought I would, mainly just a little stiffness in my neck. I have a 5cm benign nodule that grew about 50% in volume in 6 months. You sound a lot like me and appreciate your information. Do folks tend to work with endocrinologists afterwards to determine med needs? . I am 3 weeks post-op and the second batch of steri strips are only now falling off. This material is provided for educational purposes only and is not intended for medical advice, diagnosis or treatment. Currently I have had a slight sore throat. My nodule was over 7cm, but I didnt notice any effects, just that it was large and needed to come out. I was also very nervous, but now Im so thankful that I had it removed. The small nodule on the right side has never changed in size. I have always been a very joyful person and after my surgery I notice that I am more irritated and tend to be more harsh on myself than I need to be. Good luck with your decision. Surgery was 8/22/18. Hi, Eunice, You feel a bit tired for about 2 weeks but nothing terrible. I really didnt want to because I am claustrophobic, but was assured that it was very quick (21 seconds to be exact). I noticed that after the surgery, my calcium dropped "alot" causing muscle spasms and tingling (all over), I was very tired but after 3 weeks, I feel good. While it doesnt seem like much, seeing it actually on your neck after the fact is quite a shock. Im Vegan so this brand is safe if that is a consideration. Im petrified to have my whole thyroid removed as Im afraid to take medication for the rest of my life and long lasting symptoms. Again thank you all for your comments. No problem with the anesthesia. Its a bit old but its on point. Its been almost 5 months since my surgery, and the scar is hardly noticeable. I became very emotional and depressed after my surgery, I didnt really know why at the time but its reassuring to know someone else had a similar experience. I finally found a doc at UNC Chapel Hill who said to wait for the molecular results and repeat the biospy. I was running half marathons right before surgery. Today, my throat is feeling sore and overall Im feeling more aches coming out of the anesthesia so am taking pain meds. Im sharing this to say you are not wrong to take seriously the difference between having no thyroid and half a thyroid. Very minor pain after, similar to a sore throat for about 3 days. Your levels need monitoring as I am checking mine every two months via blood work. The https:// ensures that you are connecting to the Weird, I know, but true. That did it for me. I am 20 day out now except for a bit of tightness still, I am fine. Im 50 years old and not nearly as fit as you are. Epub 2019 Sep 30. Still nervous, but less so.. Hi I am having a 9cm x 5 left side mass removed from thyroid. 7 weeks after partial thyroidectomy and request help with test and levo dosage. Thoughts? This week Im feeling much better and things were looking up until last night. I was prescribed 25mg daily of Synthroid which is another brand. Whats the timeline like for fatigue going away? I was advised to have them monitored, blood work, scans etc on a regular basis. I do not have to take medication, thankfully. These were due to my body getting used to having no thyroid and to the medication. I will continue to post here and share my story. And even when I know Im about to be mean and snappy I cant help but continue with the attitude. Hello everyone, I have a 1cm nodule on my right lobe. My levels have been normal, and my parathyroid seems fine, too. So glad I happened upon this article. It kept growing little by little to about 5.2cm in 2018. My calcium is fine this is not due to calcium, but rather to the nerve stimulator used during the surgery to protect the Lyrangeal nerve. I am scheduled for a partial tomorrow afternoon. I felt queasy. You may need a partial thyroidectomy if you have thyroid cancer or a lump on your thyroid. Thank you Mary & Linda for replying and advice. Than you, I had my surgery yesterday, and just like you, I was born in the Chernobyl area and have allergies to broad-spectrum antibiotics. My job giving me a hard time about getting time off and thinks I can return the next day. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. I was leaned backward for 4 1/2 hours so it explains why I was so sore. Its been a bit more than a year and my thyroid levels are still fine without medication. Epub 2021 Oct 11. I never saw the stitches and that was fine. The experience was not half as bad as I imagined! I am fearful also of hypothyroidism as I dont need any weight gain and feeling sluggish, etc as I work full time. Then you can post results and reference ranges shown on the lab report and we will be glad to help interpret and advise further about treatment. MedHelp is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. My module were found by accident. So great to read this because everything else I I have read has scared the you-know-what out of me. Is it safe to apply any of the scar treatments at this time? Hope all is well today. I trust the surgeon but Im still breastfeeding and am concerned about the possibility of a cancer diagnosisI really dont have any symptoms of the cancer that people have been mentioning. The surgery went well. Wondering if anyone hada similar experience. Although I was terrified, I sailed through it! Im scheduled for a partial on the 2nd of February. I I just had a parallel experience. My doctor advised having it removed. Numbness I felt fine 2 days later. Unfortunately I owna business so surgery Thursday, back to work Monday. Hi Linda, I have a rather large incision due to the fact that the nodule was so large. Your surgeon may make an incision in your lower neck. I had my left thyroid removed 12/17/18. I found this site before my partial op in February, the article and all the comments are so great for info and support! I have what has been diagnosed as a low risk 5mm papillary thyroid cancer. During the biopsy, my doctor made the comment that my large nodule is very deep within my thyroid and regardless of the results, suggests a partial removal due to the fact that it is causing a tracheal deviation making it hard to swallow food, liquids, and sometimes breathe. Im sleeping much better. I had surgery on a right nodule, which turned out to be benign! and a lot of people have this. I agree this site was a godsend. But I am dreading the painful recovery, downtime, etc. The wound is healing perfectly although there is still sense of tightness around it. My doctor strongly advised a partial thyroidectomy for 2 reasons. Your provider will tell you which medicines to take or not take on the day of surgery. Hi, My surgery is 10 days away and this whole thread has been so helpful in getting me mentally prepared for it. I had partial and then full removal ( a few years ago, cough, cough 20 years ago) and bounced back from both those surgeries, it took a while to get the medication dose right and infant that is what I struggle with constantly, but the hospital stay that was just finekeep well x, I am having a Partial Thyroidectomy on April 10th, I am meeting with my surgeon today. Hi! It all went well! Hello-I love this thread. New fatigue was evident in 61% of respondents within a year after TT or lobectomy. Glad to hear you are recovering O.K. I had a transoral partial thyroidectomy two weeks ago (its a relatively new procedure kind of like laparoscopy except they go in through an incision in your mouth instead of your belly button. Make sure you talk to multiple doctors. Affirma Gene testing said 40% chances cancer, but ruled out aggressive cancers like MTC. or, has anyone ever had to have a second surgery to remove the other half? My surgeon had a monitor on my locating my vocal cords and here 8 days after surgery my voice is no longer horse sounding and I can sing AGAIN!!!! Dont fool around with this. The results came back as suspicious for malignant papilary carcinoma. My surgery was scheduled for 9:30 a.m. which meant a 7:30 a.m. arrival time. Parathyroidectomy cures almost all cases of primary hyperparathyroidism and returns blood calcium levels to a healthy range. Ive had a great surgeon and actually just had my blood work done today praying for good results. Please enable it to take advantage of the complete set of features! This is normal for several weeks after surgery and will resolve over time. The biopsy came back negative but I was advised due to its size that I might want to have it removed because they couldnt guarantee it wouldnt keep growing. I feel absolutely fine, but Ill report if the levels are still normal. 7 months later: nodules were larger and both were now suscpoius. Good luck! Im going to have a partial also and Im really concerned about my voice changing. Bethesda, MD 20894, Web Policies Im hoping the exhaustion will start to lift this coming week. I was released back to work 10 days post op. The pain is manageable but not fun. It was very reassuring, and I read it daily leading up to my surgery. I got the impression that if my levels went out of the normal range, my ENT would prescribe meds or I could move on to an endocrinologist. My nodule was 4.8 cm when it was discovered about 3 years ago. got blood work done this past Thursday, and this past Friday had to go back to the hospital because my calcium was now 13.5, and my creatinine level was 2.1. Hi. I had Dr Lopez at the Norman Parathyroid Center, also in Tampa. I did a CT which confirmed where it was sitting, and that it needs to come out. Except the thyroid doctor. eCollection 2022. This is called a conventional thyroidectomy. I am having half of my thyroid removed Tuesday may 17th. No less than 50spf suntan lotion if I do, for at least a year! After my op my left lobe seemed to be functioning fine (no mroe tremors and other symptoms) for about 2 weeks but then went hypothyroid (a whole new set of symptoms! Should I seek one more opinion? Younger age, history of depression, thyroid hormone suppression (odds ratio 1.48 [confidence interval 1.21-1.82]), and receipt of radioiodine (odds ratio 1.31 [confidence interval 1.10-1.56]) correlated with worse energy. Please continue to post on this blog. I had mine two weeks ago a partial thyroidectomy. Well , I havent lost any - but I've gained about 5kg since then. Is there the option for them to do pathology on the left side while still in surgery? The post op biopsy proved it was negative so it ended up being the right choice. STIs are the most common cause of genital sores. I had a partial thyroidectomy to remove a large solitary non cancerous nodule just over 4 weeks ago. Its just been bothering me that he wants to potentially take my whole thyroid. She had me buy over-the-counter, professional grade silicone strips. I had a partial thyroidectomy 3 weeks ago. Had my partial thyroidectomy 6 days ago due to a hyperfunctioning autonomous nodule (aka hot nodule). I know this is forever ago, but how are you? Im going in on Friday morning. Another said a week. A major symptom of hypothyroidism is fatigue, along with several other symptoms. I did and I counted off 22 seconds which wasnt too bad). .. My doc said it could take 2 months. Results: Of the 2,584 respondents, 988 (38.2%) reported much worse or somewhat worse energy and 1,310 (50.7%) reported moderate to very severe fatigue. While partial thyroidectomy is a fairly routine and simple (relatively speaking) surgery, surgeons seem to have different incision sizes. I caught a terrible flu/cold during my 2nd week of recovery just as I was ready to return to work. The standard dose for one person very well may not work for another. Maybe you could ask for something like Xanax to take the morning of or perhaps the night prior to ease your nerves? If it wasnt for that, I think Id have been off the heavy duty painkillers within a couple days of the surgery instead of taking them for a week. You should insist on being tested for Free T4, Free T3 (not the same as Total T4 and Total T3), cortisol, Vitamin D, B12 and ferritin. We offer this Site AS IS and without any warranties. I was thus waffling on the surgery but given the size of this nodule, I finally decided to do it sooner rather than later. If he were to find any further abnormallity not caught on my biopsy or ultrasound, then I think I can make a decision then to go under another surgery to completely remove it. Thanks everyone for all the support. I had my surgery in town at MD Anderson. Hi Paula Wish I could show you my before and after pics!! Ive had multiple nodules which were discovered 10 years ago. If you have a sedentary job fine. I had no idea what to expect. Mine is a pretty good, clean scar but 2 long and visible above a t-shirt (!!!) I think a week would be a bit quick depending on the operation and the size of your thyroid. The procedure can be performed in two ways: 1. If Ann Boleyn felt like I do on the day of her execution shed have skipped all the way to the swordsman and greeted him like a long lost friend !! With the splint on I can do anything with my hand. Im about to have this surgery and needed to find someones feedback about what is going to happen.I have the full understanding that everyone is different, however up til this point, Ive been coming across a lot of complaining about the process. LOL. Had a partial thyroidectomy. I, too, have a need for a partial thyroidectomy and am pretty scared, unsure what to expect, etc. I lost my voice after the first night. Patient reported complications or side effects experienced as a result of thyroid cancer treatment (n=2584). He also biopsied a small nodule on the left thyroid & a right parathyroid gland. So helpful thank you all so much. (Googling death by thyroidectomy doesnt bring up much of anything so you can skip that searchand breathe a sigh of relief. I found one I liked and decided to bite the bullet and have the surgery after the holidays. By the afternoon I was sound asleep at my desk and I didnt remember putting my head down! 2016 Jul 20;354:i3839. Im seeing so many posts of lack of energy and the upheaval of the body that Im just not sure what to do. PTH anywhere from 80-110. Ive read so many scary posts about managing hormone levels and poor quality of life issues after full thyroid surgery, etc. It is such a relief to hear about your experience. The surgeon said I wouldnt need pain meds beyond Tylenol after the first few days. Post Operative Expectations. Im one week past a partial thyroidectomy for a 5mm papillary carcinoma. But youll get there, just try to allow yourself a generous amount of time to heal. Mary, great advice! The operation went smoothly and I was pleasantly surprised by the easy recovery. * Controlled for age, sex, and comorbidity. Available for Android and iOS devices. Its nice to read about your experience with this surgery. Thanks so much for your replies- I really appreciate it and find it helpful. I was awakened out of my sleep coughing with a burning and choking sensation in my throat. he hardest thing about the surgery is having to sleep sitting up, i the hydrocodon also makes my nausceous abs dizzy, i wish i could just get a good nap. Sounds vain I know, anyone have problems with weight gain after partial thyroidectomy? Copyright Merative 2023 Information is for End User's use only and may not be sold, redistributed or otherwise used for commercial purposes. Thyroid cancer treatment side effects and complications associated with worse energy and significant fatigue. I have pain in my neck below the incision site and I cant talk well yet. Pain afterwards was hard for two weeks but movement is fine now and scar is big but calming down. After one or more incisions are made, your surgeon will remove part of your thyroid gland. So far, I feel totally normalso Im hoping meds wont be needed. I am 56 and have also been going every 6 months to have a nodule on my right thyroid drained. ANY advise or words of encouragement would be appreciated. Dont play on driving for at least a week, if not a little longer. Copyright 2019 Elsevier Inc. All rights reserved. Am I being over cautious or should I just get on with the tiredness and slight weight gain to wait and see. Going back to my office today too. Good luck with your recovery. I had ultrasounds and biopsies over a 4 year period. After two weeks everything was totally back to normal. I spent one night in hospital and the next afternoon my drain and half the clips were removed. Went to endocrinologist who sent me for a ultra sound and it appears that my thyroid grew back and it us growing substernal. so i did & they did a FNA wich was done thru some company Afirma $6,500! I fought fatigue prior to having removal, but now I have extreme wicked fatigue. I hope all went well with your surgery. Im extremely exhausted but from previous posts that seems to be normal. These voice problems include breathiness with loss of air during vocalization, change in pitch, inability to project the voice, and early vocal fatigue, any and all of which can impair communication. Ask how big yours will be and where it will be. I had what they thought was a benign nodule on one lobe (4 cm), so had partial thyroidectomy. You might increase 15 mg per day every 2 to 3 weeks until you feel your best. Not sure if they will want me to remove left because of cancer cells found, which by the way was stage 1. I am telling you though, you will be so relieved to get the surgery over with. Tsh .397 If you can get a second opinion, and if it will help remove any doubts, then yes get it. Im so glad I just scheduled and had it done. I should probably stay off other websites and forums, which are filled with horror stories. I never told anyone I was having surgery so I had my assistant tell clients I had laryngitis. My nodule was in the middle of the thyroid so the doctor was hoping to take half but I had to take full thyroid, plus 2 parathyroids (one with an cancer specimen, the other was swollen and my mom has a condition with hypercalcemia). My hormones were fine, I had no symptoms so my endo still believed observation was the best course of action. I hope this puts anyone going through this at ease. The benefit is that its scarless). My doctor offered a similar option. Im in good shape and energetic. I had the hemi-thyroidectomy last September. I am going to have a partial thyroidectomy and very worried about fatigue and weight gain. The test was clean and he only took the right half. Thank you for any input. Patient-Perceived Lack of Choice in Receipt of Radioactive Iodine for Treatment of Differentiated Thyroid Cancer. Pathology report was "benign" Thank God and I went for my labs yesterday (seems like they were taking all of my blood).results will be in, n a few days. I find that Im slightly hoarse due to breathing tube irritation and Im also very tired. Right side removed & 1 of the left parathyroid glands. Apparently the nodules were pressing on my vocal cords continuing to make me horse and with the nodules gone I have my voice back!!! I am having a partial on 5/31. I can understand is a module is malignant or if there are other symptoms that could suspect cancer . Now I am at the stage where my throat feels like it is tightening. I went back to the office the third week, and energy levels felt good, but by Friday I had to leave early and go home to sleep. Thank you, thank you for your post. In your case, youd have to consider that if you dont have the surgery you will probably need scans and biopsies over and over while they monitor this. Also what are the reference ranges shown on the lab report for the Free T4 and Free T3 results? I still manage pain with tylenols. Ive been reading too much and have began to develop some anxiety. I have had multi nodules for 50 plus years and have grown to 9.65cm almost 4. Hi Molly, this is the week 3 after removing my right lobe. I thought since just partial removal I wouldn't feel a big changewrong! I tell him Im looking foward to it! Weight has been O.K. Im a mom of three boys and this is not anything like Ive ever experienced before but Im not sure if its just because Ive had a month off and this isnt my Norm or if there is truly something off balance. Over the past couple of weeks I've been experiencing sudden onsets of exhaustion during the day and extreme fatigue even after 12hrs sleep. My nodules were found by accident on a chest CT of my lungs and the biopsy said suspicious and atypical so we really had no choice but to remove them. * Weighted percentages are shown. Sometimes its mind over matter just get up get out and try to enjoy what you did before. it all started with a swollen thyroid gland my primary dr said it was no big deal that it would go away after my cold was gone. Youll be back to normal in no time and very happy that you had this done. I was very nervous and all of the comments really helped to ease my anxiety about the procedure and recovery. I also work full-time and have no idea what to say to my office. My incision is sensitive, not sure how long that will last. Hi, how did you manage the anxiety going into this and also how long was your surgery and for how long in the hospital after the surgery. Starting to get nervous. One has grown to over 4cm now and are now disturbing my ability to swallow large pulls, etc. I am trying Extra strength Tylenol for it now and it seems to be as good as the Norco without the side effects. Is this normal?? Results: I had a partial lobectomy 10 weeks ago to remove a 7cms nodule. Otherwise, my surgeonsaid people are back tonormal pretty much at about the six week mark. You might also have to take supplements after thyroidectomy to balance your calcium levels. This is a good blog. Molly, A CT scan is a good idea. Wallner LP, Reyes-Gastelum D, Hamilton AS, Ward KC, Hawley ST, Haymart MR. J Clin Oncol. Health literacy and fatigue, anxiety, depression, and somatic symptoms in patients with differentiated thyroid carcinoma from West China: A cross-sectional study. (Then). My next is completely fine. The ENT who removed half of my thyroid monitors my thyroid levels. Five days ago, I had a partial thyroidectomy. Studies show that long term fatigue is common after thyroid surgery. Good luck! I hope you have a speed recovery! Hi! I dont have to go back for one year. My hormone levels were all normal. I have the option of general anesthesia or local sedation and wonder if anyone has had this surgery with local sedation since I think it would make recovery faster and easier. It really looks fantastic. The pillow pile on the bed is helping but any movement hurts right now. CST# 2011220-40. Calcium just a bit, runs around 9.9-10.1. After a thyroid lobectomy, you'll need to have your thyroid hormone levels checked and will be prescribed a thyroid hormone replacement, if needed. The ultrasound had not shown this. Im being told the risk for cancer is usually around 60-70% with that diagnosis. I love to workout and do yoga, so want to go back as soon as possible. Always consult your healthcare provider to ensure the information displayed on this page applies to your personal circumstances. I see clients for 5 hrs in afternoons, but its fairly busy and I have to talk alot. My throat hurt quite a bit, and my neck was stiff. Hello, LOL! Surgery to remove all or part of part or all of the thyroid gland is commonly needed to treat both benign (noncancerous) and cancerous thyroid disease. You helped me decide I needed 3 more days off work and I was thankful I did that. Keep in covered if youre outside. This may be a short-term problem after surgery, or it may be a long-term problem. Since your calcium and PTH is still high, it sounds like you might have had a second one that is still in there, or perhaps a healthy gland was removed and the original adenoma is still present. My thyroid function tests before and just after surgery were fine and are due to be checked again 6 weeks post op. I too had a large nodule left love growing down into my chest wall pressing and pushing my treachea. 2019 Nov;166(5):895-900. doi: 10.1016/j.surg.2019.05.035. @AnnMarie I am just seeing your message. Thank you so much for your post about the partial thyroidectomy. Hi Dawn Do NOT worry. it showed a cyst pushing my wind pipe so he recommended draining it. It really wasnt as bad as I thought. My surgeon told me that the half with the nodule would be removed. Hi everyone I had a partial thyroidectomy on March 8th this year. I also had a benign thyroid nodule that had been slowly growing so he conveniently removed it at the same time. If I knew how easy the surgery was, I would have had it done much sooner. After that If I started to hurt I took Tylenol and it was fine. National Library of Medicine My other major concern is fatigue after the surgery. It turn out to be a 4 mm tumor- papillary carcinoma with follicular variant. There are also physical exercises like neck stretches and voice therapy that can support your recovery after surgery. My only issue was I developed phlebitis which can lead to serious issues if left untreated. I just wanted to update that I am post surgery. It turned out to be large and more extensive than he had imagined. Yes your inicision starts to physically heal and you may feel like yourself within a week or two but no one talks about the months following. Good luck to everyone! I was able to move my neck enough to drive after about 5 days. With a thyroid operation, there is another reason for tiredness. This low free thyroid hormone concentration in the serum may be one of the causes of depression, weight gain, hair loss, fatigue, and so on that many patient's experience after the procedure. Ive also experienced random days of energy. If I was working, I think time off would be at least two week, maybe three. I have no personal experience with your condition; however a search of the internet would show that many people find they do need thyroid med afterward. Also, the follow up blood work came back as a 10 which means hypothryoidsim. I used to tell my husband that I feel like Im going to die at night I felt like I was suffocating and I didnt know why. The presence of low serum calcium levels for >3 months after thyroidectomy was associated with worse energy (odds ratio 1.26 [confidence interval 1.02-1.54]) and substantial fatigue (odds ratio 1.49 [confidence interval 1.21-1.84]). Learn how your comment data is processed. Some tout a minimally-invasive technique with very small incisions. I am having a large 6cm thyroid nodule removed at the end of this month, along with a suspected parathyroid tumor. When I remove the splint, I can not use my hand/wrist due to the nerve pain. The site is secure. Your email address will not be published. By using this Site you agree to the following, By using this Site you agree to the following, Tiredness ,lethargy after partial thyroidectomy. Ultra sound results were not so kind, ticking off 6 characteristics for cancer though this does not automatically mean, as I understand it, that cancer cells are definately present as yet.

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